The TBC1D24 Foundation is excited to announce new partnerships with the Epilepsy Foundation of America's Epilepsy Health Learning System (EHLS) and the Rare Epilepsy Network (REN).
Epilepsy Health Learning System (EHLS):
EHLS is a part of the Epilepsy Foundation of America. Cofounder JoeyLynn is now a Patient Family Parter wearing two hats: representative of the TBC1D24 Foundation and as a parent of a child that died from epilepsy at the Children’s Hospital of Philadelphia.
The vision of EHLS is in line with many of our own goals, “EHLS Vision is for all people with epilepsy to live their highest quality of life, striving for freedom from seizures and side effects, and
we won’t stop until we get there”.
Rare Epilepsy Network (REN):
TBC1D24 Foundation is now an official affiliate of the Rare Epilepsy Network.
The goals of REN are to unlock the causes of rare epilepsies, improve diagnosis (avoiding delays and misdiagnosis), treatment and quality of life, and to find cures. The organization brings together individual rare epilepsy groups to share best practices, foster growth and further each others' awareness and research goals.
Find out more about these amazing organizations at the links below:
https://bit.ly/EpilepsyELHS
Looking forward to more similar relationship building as we continue to grow and change the world for our kids.
Best, JoeyLynn & Bridget