Jun 28, 20202 min readHypotonia - Joey's Story Our relationship with Hypotonia started as soon as Joey was born. He was diagnosed with mild hypotonia during his admission to the...
Jun 25, 20202 min readHypotonia and Standing - Lilly's story We grieved the different diagnoses, first deafness, next seizures, then hypotonia, and finally Tbc1d24 as the responsible gene which...
Mar 15, 20202 min readA day in the life by Andrea, Sammy's mamaI work full time as a second grade teacher. This week we are on spring break...