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Jun 28, 20202 min read
Hypotonia - Joey's Story
Our relationship with Hypotonia started as soon as Joey was born. He was diagnosed with mild hypotonia during his admission to the...
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Jun 25, 20202 min read
Hypotonia and Standing - Lilly's story
We grieved the different diagnoses, first deafness, next seizures, then hypotonia, and finally Tbc1d24 as the responsible gene which...
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Mar 15, 20202 min read
A day in the life by Andrea, Sammy's mama
I work full time as a second grade teacher. This week we are on spring break...
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