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Hypotonia - Joey's Story
Our relationship with Hypotonia started as soon as Joey was born. He was diagnosed with mild hypotonia during his admission to the...
Jun 28, 20202 min read


Hypotonia and Standing - Lilly's story
We grieved the different diagnoses, first deafness, next seizures, then hypotonia, and finally Tbc1d24 as the responsible gene which...
Jun 25, 20202 min read


A day in the life by Andrea, Sammy's mama
I work full time as a second grade teacher. This week we are on spring break...
Mar 15, 20202 min read
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