News

June 2020

June 2020

This Father's Day we want to send a big thank you to the fathers, grandfathers, godfathers, uncles - biological or otherwise - who look out for all the extra special kids out there.  Your love, support, and guidance make a huge difference in their lives.  Advocating, hospital stays, endless doctors visits, and countless medicine measurements are no easy task but you guys make it look good.  Our families rely on your love and support so, thank you. 

The TBC1D24 Foundation is excited to announce new partnerships with the Epilepsy Foundation of America's Epilepsy Health Learning System (EHLS) and the Rare Epilepsy Network (REN) - read more about our involvement on our blog. 

March 2020

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March 26th is Purple Day!

Purple day is an international grassroots effort dedicated to raising awareness about epilepsy worldwide.  On March 26th people around the world are encouraged to wear purple and host events in support of epilepsy awareness. 

Check out pictures from our supporters in their purple and TBC1D24 "Rare" shirts on our Facebook and Instagram using #TBC1D24

Check out this great article about Ariella and her amazing family published in the Harvey-Waroona Reporter (Australia).

February 2020

February is Rare Disease Month with February 29th being rare disease day.  Join us in celebrating this year by spreading awareness and raising funds for much needed TBC1D24 research.  

UPDATE

we raised $1,706.72

and sold 163 shirts!

📷 credit: ADA National Network (adata.org)

 

Today marks the 30th Anniversary of the Americans with Disabilities Act! 

The ADA was signed into law on this day in 1990 by President George H.W. Bush. This important civil rights law prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public. The purpose of the law is to make sure that people with disabilities have the same rights and opportunities as everyone else. 

 

#ADA30 #ThanksToTheADA

 

We still have a ways to go - but let's celebrate how far we've come!

May 2020

An update from our founders

April 2020

In honor of Joey Nolan's first heavenly birthday, area TBC1D24 affected families donated lunch to the Children's Hospital of Philadelphia neurology floor.  Our heartfelt thanks for caring for patients and their families through their hardest times, even while a pandemic is goes on.

Sending love and strength to everyone on the front lines.

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