TBC1D24 Foundation was organized to support research efforts and as connecting site for caregivers, families, and those diagnosed  with TBC1D24 mutations. This foundation will serve to help support and connect patients and caregivers to necessary medical and therapeutic services. TCB1D24 Foundation is committed to improving treatment of and finding a cure for TBC1D24 mutation and it’s associated disabilities and comorbidities.

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to the TBC1D24 Foundation Website

Why A Zebra?

An aphorism was coined in the late 1940's when medical interns were instructed "when you hear hoofbeats, think of horses not zebras."


The rare disease community has come to identify with the zebra as we're the exceptions to the usual rules.  


New blog post by Brooke!

Mum Brooke shares about her family's journey to become a party of five!  Read about the options and challenges of being a family with a known genetic mutation.

The Nolan family's fundraiser in honor of their TBC1D24 angel, Joey, concluded this fall and sold 521shirts which raised $5,032 for the TBC1D24 Foundation - thank you to everyone who purchased a shirt! 

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