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WELCOME

We're happy you found us!  Find information on the tb1cd24 mutation, connect with other families and find out how you can support ongoing research efforts.

Rare epilepsy family support.

Support

Our goal is to be a soft landing for families affected by this mutation, by connecting families to each other and appropriate resources.  We are rare and few but together we are strong. 

Research into rare genetic epilepsies.

Research

Through our grassroots effort we are fundraising to support research efforts for better understanding of this mutation and effective treatments.

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Awareness

Raising awareness of TBC1D24 and it's symptoms helps educate families and caregivers.  We aim to have quicker diagnosis and improve the quality of life for all affected. 

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