TBC1D24 Foundation was organized to support research efforts and as connecting site for caregivers, families, and those diagnosed with TBC1D24 mutations. This foundation will serve to help support and connect patients and caregivers to necessary medical and therapeutic services. TCB1D24 Foundation is committed to improving treatment of and finding a cure for TBC1D24 mutation and it’s associated disabilities and comorbidities.
to the TBC1D24 Foundation Website
Why A Zebra?
An aphorism was coined in the late 1940's when medical interns were instructed "when you hear hoofbeats, think of horses not zebras."
The rare disease community has come to identify with the zebra as we're the exceptions to the usual rules.
The Nolan family has four days left of their fundraiser in memory of the special little boy who inspired this whole organization.
Thus far, Jump for Joey Towards a Cure has sold over 340 shirts and raised over $3,000 for the foundation.
We're so lucky to have such a passionate founder and so many people who support our fundraising even through these challenging times. Let's keep jumping for Joey and see how far we can get!